My Disability Roadmap – Watch Now!

My Disability Road Map

Streaming WORLDWIDE in The New York Times with captions and audio descriptions available. No subscription is needed to watch!

In the short documentary, Samuel seeks out guidance from America’s most rebellious disability activists. He wants to learn how they built full adult lives — as a road map for himself and others. “No one tells you how to be an adult, let alone an adult with a disability,” he says. “But there are badass people with disabilities who figured it out. Maybe they could be my mentors.”

I’m a College Student
with a Disability. Stop Treating
Me Like a Child.

The path into adulthood is a precarious one for those
with a disability. So Samuel Habib, 21, seeks out
guidance from America’s most rebellious disability activists.

Original source New York Times https://www.nytimes.com/2022/05/17/opinion/my-disability-roadmap-adulthood.html

Direct Support Professionals and the COVID-19 Vaccine


This 11-minute video is about vaccine safety and the reasons why it is important for direct support professionals to get vaccinated.
The video includes:

• The reasons why people with intellectual developmental disabilities are more vulnerable medically and have increased chances of getting a serious illness if they get COVID-19
• How the vaccine was developed quickly, compared to other vaccines
• How the vaccine works in the body, including what to expect when you get vaccinated
• How the virus can be passed to vulnerable people
• Reasons to get vaccinated even if you have already had COVID-19 • Long COVID-19, and how it affects the body
• How COVID-19 can affect pregnancy Produced by the Institute on Community Integration at the University of Minnesota.

Better Care Better Jobs Act (BCBJA)

Better Care Better Jobs Act (BCBJA)

In March of 2021, President Biden proposed a major $400 billion investment in Home and Community-Based Services (HCBS) as part of the American Jobs Plan.

On June 24, 2021, The Better Care Better Jobs Act was introduced to operationalize and expand the proposal in the Senate as  S.2210  and in the House as H.R.4131. The bills would enhance Medicaid funding for HCBS and encourage innovative models that benefit care recipients and direct care workers.

Home care is the most cost-effective, fiscally responsible, and desired setting of care. Americans prefer to receive services and supports at home, but benefits and eligibility vary across states leaving almost 820,000 Americans remaining on waitlists for years.

There is currently a national shortage of Direct Support Professionals to provide support and care to people with disabilities and seniors. Over a 50% turnover rate, low wages, and sustained vacancies, leaves clients with none or inadequate support. 

The Better Care Better Jobs Act (S. 2210/H.R. 4131)  would make key improvements to the Medicaid program addressing both patient and caregiver challenges. 


• Permanently increase the Federal Medical Assistance Percentage (FMAP) by 10% for HCBS.
• Expand HCBS to require personal care services, family caregiver supports, and respite care.
• Address and annually update HCBS payment rates with an opportunity for public input.
• Update and develop training opportunities for the workforce.
• Require a maintenance of effort mandating that new funds supplement and not supplant current outlays.
• Make permanent spousal impoverishment protections for recipients of HCBS.
• Make permanent the Medicaid Money Follows the Person program.

TAKE ACTION NOW!

Act Now: Urge your Members of Congress to meet the needs of people with disabilities, their families, and the direct care workforce!

Please support the $400 billion Better Care Better Jobs Act, which will expand home- and community-based services (HCBS) that helps people with disabilities and seniors live with dignity in their homes and communities. It includes services such as help with daily activities, transportation, support while on the job, care coordination, and more.  It addresses the direct care workforce crisis. These services enable people to maintain their independence
and stay active in their communities. 

ADDITIONAL RESOURCES:

New Documentary – This is Not About Me

This is Not About Me

Autistic and non-speaking. Stuck in an educational system that has given up on you. Restrained or rewarded with candy. This is Jordyn Zimmerman’s story and it is shared by so many other students. Watch the story of one autistic woman that fought hard to be recognized and trusted. Share the trailer to bring awareness and change the lives of countless others fighting that same system today.

The film is now available for rental for $9.99 All proceeds from the film will go to the Autistic Self-Advocacy Network (ASAN), CommunicationFIRST, and Thinking Person’s Guide to Autism to support them in their missions. 57 minutes. 30-day rental period.

Watch this powerful movie: This Is Not About Me.
https://thisisnotaboutme.film/ 

#ThisIsNotAboutMe
#endseclusion

July is Disability Pride Month!

July is the “Disability Pride Month” in the US. 2021 is the 31st Anniversary of the ADA.

Disability Pride

Disability Pride Toolkit and Resource Guide

The National Council on Independent Living.

What is Disability Pride?

Disability Pride is the idea that people with disabilities should be proud of their disabled identity. People with disabilities are the largest and most diverse minority within the population, representing all abilities, ages, races, ethnicities, religions and socio-economic backgrounds.

Information & Resources for People with Disabilities