The Disability Equality in Education (DEE) organization is a cross-disability led non-profit organization that initiated efforts to implement a Disability Inclusive Curriculum in schools. Pennsylvania is the first state to introduce the curriculum, which DEE hopes will eventually take place in all schools nationwide.
The ‘Disability Inclusive Curriculum’ will help K-12 students understand that disabilities are natural by embedding representation and lessons about people with disabilities throughout the general education curriculum, activites and environments. It includes teaching students about the political economic, and social contributions by people with disabilities.
DEE brings a unique perspective and expertise on disability in to the educational setting because of contributions by their network of disabled people and advocates from around the world. “Nothing About Us Without Us” is the heart of who they are and what they do.
A comprehensive ‘Disability Inclusive Curriculum Lesson Plan Library‘ was created by DEE and is available on their website as a resource for teachers to explore disability in the classroom. The focus is to normalize the idea of disability with all students.
In March of 2021, President Biden proposed a major $400 billion investment in Home and Community-Based Services (HCBS) as part of the American Jobs Plan.
On June 24, 2021, The Better Care Better Jobs Act was introduced to operationalize and expand the proposal in the Senate as S.2210 and in the House as H.R.4131. The bills would enhance Medicaid funding for HCBS and encourage innovative models that benefit care recipients and direct care workers.
Home care is the most cost-effective, fiscally responsible, and desired setting of care. Americans prefer to receive services and supports at home, but benefits and eligibility vary across states leaving almost 820,000 Americans remaining on waitlists for years.
There is currently a national shortage of Direct Support Professionals to provide support and care to people with disabilities and seniors. Over a 50% turnover rate, low wages, and sustained vacancies, leaves clients with none or inadequate support.
The Better Care Better Jobs Act (S. 2210/H.R. 4131) would make key improvements to the Medicaid program addressing both patient and caregiver challenges.
• Permanently increase the Federal Medical Assistance Percentage (FMAP) by 10% for HCBS.
• Expand HCBS to require personal care services, family caregiver supports, and respite care.
• Address and annually update HCBS payment rates with an opportunity for public input.
• Update and develop training opportunities for the workforce.
• Require a maintenance of effort mandating that new funds supplement and not supplant current outlays.
• Make permanent spousal impoverishment protections for recipients of HCBS.
• Make permanent the Medicaid Money Follows the Person program.
TAKE ACTION NOW!
Act Now: Urge your Members of Congress to meet the needs of people with disabilities, their families, and the direct care workforce!
Call the Capitol Switchboard at (202) 224-3121 (voice) or (202) 224-3091 (TTY) and ask to be connected to your Senators or Representatives.
You can also use Resistbot to turn texts into faxes, mail, or hand-delivered letters by texting “RESIST” to 50409.
Please support the $400 billion Better Care Better Jobs Act, which will expand home- and community-based services (HCBS) that helps people with disabilities and seniors live with dignity in their homes and communities. It includes services such as help with daily activities, transportation, support while on the job, care coordination, and more. It addresses the direct care workforce crisis. These services enable people to maintain their independence
and stay active in their communities.
Disability Pride is the idea that people with disabilities should be proud of their disabled identity. People with disabilities are the largest and most diverse minority within the population, representing all abilities, ages, races, ethnicities, religions and socio-economic backgrounds.
Information & Resources for People with Disabilities